I hope it’s just a tiny hiccup in my MS following my flu… The IV steroids are working great though. Yes, it’s unfortunate, but I’m on another round for an Optic Neuritis relapse.
I’m already much better! Now, if only I could sleep – steroids keep me up and wired. I’m just about to resort to taking Ambien.
The 3 things you definitely need when doing IV steroids are Ambien, Pepcid, and Winto-Green Lifesavers (to keep the taste of pennies in your mouth away).
This is my second time starting LDN. I had to stop LDN last July because I was getting pounded with steroids due to the frequency and relentlessness of my relapses last year, every MRI showed a very active disease process. I was on Copaxone at the time (which obviously was doing nothing to slow my relapses) and my relapses were one right after the other and then I was switched to Avonex. I was in such a funk. But now, being liberated Life is so much more colorful! And I feel now is the time to get the benefits of LDN again.
1.5mg LDN taken tonight – now going to bed… goodnight!
Those words rang clearly from my neurologist’s mouth as I tried to hold back tears.
A few days ago I had my 6 month checkup MRI, and it shows new lesions, specifically “On contrast administration abnormal enhancement is associated with at least 3 plaques which are identified within left centrum semiovale, left periatrial white matter and left lateral frontal lobe within the middle frontal gyrus. These findings are compatible with active demyelination based on imaging and have overall progressed when compared to prior MRI examination.” Basically, lots of medical jargon meaning I still have yucky stuff going on in my head.
Boooooooooo. 🙁 I have been on a new injectable medication since August, and we still aren’t sure if it is working yet or not. I get re-scanned in 3 months and then we’ll see what the next step will be.
So, as of right now, to quiet things down, I have been ordered another round of IV Solumedrol. Today was day one of the infusion, and it went well. I am hoping I will be able to sleep though, since steroids have a tendency to keep you wired.
But at least the good news is that I do have a lot of good brain left. So, I guess it can’t all be that bad. Oh, and I forgot, my spine MRI is clear. More news for which to be happy and grateful.
