Tag Archives: Insomnia

Prentice Bed Hack for Comfort during HSCT

Many of us that end up as inpatients do not like that the beds on the 16th floor Prentice are pressure relieving beds because they are loud and constantly moving and shifting you side to side so you don’t get a pressure sore. This can make for a rough night, on top of being woken by nursing during the night for vitals and blood draws. And it gets annoying during the day when we are hanging out in bed watching TV, eating a meal, getting chemo, etc. Many of us are not totally bed bound and do not need to worry too much about pressure sores and if you are experiencing some nausea, it doesn’t help things.
I’ve been making an effort to teach all the nurses that come into my room on how to lock the bed for 8 hours, so I am hoping that helps. But I thought I would post a video so that we could know how to do this “bed trick” ourselves at night and throughout the day.

This may be the week I get my dates for Chicago!

How exciting is it to think about that! I’m nervously organizing things in my house to make the transition from Mom and Dad being gone for 2-3 months in Chicago a little easier for my mother and mother-in-law. My dad is currently traveling to Poland because my Babcia is slowly passing. I would do anything to be there if I could, but I know she would want me to move forward and get this MonSter taken from me forever!

So many emotions in my head tonight. I am trying to go to sleep earlier and wake up earlier, to get into a more natural sleeping pattern, but it is so difficult with the daytime fatigue and the nighttime insomnia. I took my Ambien about 30 minutes ago and it feels as though it is working. Hopefully of to sleep I go to try to conquer another day of cleaning and organizing tomorrow.

Daylight savings Perk!

It’s just before 11pm and I’m actually in bed ready to go to sleep!

I fought through my fatigue today and did not nap during the day. Also, since we moved our clocks backwards I am more tired now since my body still feels as though it’s almost midnight. This might be a possible reset of my internal sleep clock!  That would be awesome!