Tag Archives: Relapse

Memories from 5 years ago…

I can’t believe how much better I feel!

Feeling Loopy! My first HSCT Video!

My first video on here. I know I look tired and worn out. It’s been a long day!

Trying to sleep after IV steroids, dexamethasone, and Excedrin is a little rough. So I took an Ambien and it’s starting to kick in. Enjoy the video post!

#HSCT #stemcells #CureMS #nochemonocure #drburt

Time to start blogging again…

Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.

Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.

I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.

Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!