Tag Archives: disease

Everyday Miracles

I am so honored and humbled to be one of Dr. Burt’s Everyday Miracles. Dr. Richard Burt takes us on his 30+ year quest to treat Multiple Sclerosis and autoimmune diseases with Hematopoietic Stem Cell Transplantation (HSCT). He delves into how he goes against the medical establishment, to prove his treatment as one to be considered, as well as possibly become the standard of care, to treat autoimmune diseases.

Nearly 6 years have passed, and I continue to be free of relapse, free of MS medications, and using no assistive devices. Absolutely surreal!
To Dr Burt I say, Thank you for saving so many of us and for continuing your ground-breaking research. You have given us hope that we can beat these previously incurable diseases.

Dr. Richard Burt – 2020 ACTS Award Presentation

Below is a link to Dr. Burt’s presentation for the ACTS award. 

https://www.youtube.com/watch?v=PRxmIhM4T_M

Congratulations again Dr. Burt!

Thank you for saving my life along with lives of countless others with Multiple Sclerosis and other autoimmune diseases!

Time to start blogging again…

Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.

Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.

I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.

Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!