I cannot believe that one year ago on May 13, 2016, I took my last Tysabri infusion, and have been off all DMDs!
I’ve been hiding a bit because I’ve been a bit unwell, but I’m fighting hard!!
How exciting is it to think about that! I’m nervously organizing things in my house to make the transition from Mom and Dad being gone for 2-3 months in Chicago a little easier for my mother and mother-in-law. My dad is currently traveling to Poland because my Babcia is slowly passing. I would do anything to be there if I could, but I know she would want me to move forward and get this MonSter taken from me forever!
So many emotions in my head tonight. I am trying to go to sleep earlier and wake up earlier, to get into a more natural sleeping pattern, but it is so difficult with the daytime fatigue and the nighttime insomnia. I took my Ambien about 30 minutes ago and it feels as though it is working. Hopefully of to sleep I go to try to conquer another day of cleaning and organizing tomorrow.