Category Archives: Symptoms

#TBT My very first HSCT video

I was pretty tired and sedated at the end of the night.

Here’s the crazy video that started it all for me, first posted when I began my HSCT journey on Jan 28, 2017 at Northwestern in Chicago.

#tbt #hsct #stemcells #curems #northwestern #ms #multiplesclerosis #bald #baldisbeautiful #chemotherapy #nochemonocure #mobilization #hsct4ms #hsctforms #hsctwarrior #hsctwarriors

They warned me about the Neupogen bone pain

And let the bone pain begin! This pain is no joke from these Neupogen shots. My sternum, sacrum, iliac crests and skull are killing me this morning.

I have been taking Claritin to ward off this bone pain and it’s been doing a pretty good job for the first 5 days, but today it decided to rear its ugly head.

I took some Tylenol so hopefully it will ease up with a little time.

***UPDATE: I had to cave and take a Norco a few hours after shot #5. The pain was a good 8/10. Not fun but doable. Just keep moving forward!***

#hsct #stemcells #cureMS #bonepainsucks

Tomorrow Neupogen!

My MRI on Thursday showed that I have more progression and activity of my MS. The MRI showed new and old active lesions, so I ended up having two days worth of IV steroids during the start of my Mobilization.

 I had my chemo on Friday and am recovering with a bit of fatigue and some sore muscles. I have been sleeping a lot but I am feeling pretty good.  

Tomorrow at 7am I begin my Neupogen shots every morning until February 6th. I wish I were updating more but I’m sleeping quite a bit. Tomorrow we’ll see how I feel once I start my shots!

#hsct #stemcells #cureMS #nochemonocure #drburt