This was the stem cell trial I was a part of two years ago! I amazingly got all of my vision back!
We, the subjects, will meet on the 24th this month for a cocktail get-together to find out the overall results of the study and to learn about upcoming new trials. I’m hoping they do a followup study with us 24 original patients to see about the possible improvements of performing multiple stem cell treatments.
We are coming upon my six month post-stem cell infusion visit. My goodness, time has flown!
I continued having a lot of trouble with eyesight in my left eye since November and went through three 5 day IV infusions with no improvement in my eyesight 🙁 Thus, I chose to do something I never thought I would do and started on the medication Tysabri
In 5 days I will be having my 4th Tysabri infusion.
And amazingly my eyesight has gotten much better – not directly due to the Tysabri, but simply because my body has stopped my continuous relapse of Optic Neuritis, and I have gotten time to have my body slowly try to heal itself.
I have noticed that I feel better on the Tysabri but about 1 week before the infusion my body reminds me that I need my infusion. In fact, today and for the past three days I have noticed some increased difficulty walking, increased spasms and increased fatigue. It’s weird… I feel like I NEED my Tysabri to feel better.
5 days and counting…
My stem cells are still circulating in my body and still need time to do some healing. At least now they have a chance since my relapses have thankfully stopped for the time being.