My MRI on Thursday showed that I have more progression and activity of my MS. The MRI showed new and old active lesions, so I ended up having two days worth of IV steroids during the start of my Mobilization.
I had my chemo on Friday and am recovering with a bit of fatigue and some sore muscles. I have been sleeping a lot but I am feeling pretty good.
Tomorrow at 7am I begin my Neupogen shots every morning until February 6th. I wish I were updating more but I’m sleeping quite a bit. Tomorrow we’ll see how I feel once I start my shots!
I am off Gilenya for good because I was having bad, scary heart palpitations and am currently relapsing with loss of vision in both eyes, cog fog and weakness in my left leg.
I have an MRI tomorrow afternoon, after which I am starting a three day course of IVSM again.
Then I have a washout period of no medication and will be likely starting Tysabri.
Thus far, I have had Copaxone, Avonex, Gilenya, 2 CCSVI procedures, LDN, and 8 IV solumedrol infusions.
I am so ready for something to give, finally for the positive.
Some days are good and some are bad. I limp quite a bit because of my left leg weakness, and my eyes are still bad making it difficult to read and see sometimes, especially when I am fatigued. My left arm is still weak and not 100% with coordination, but I think it is a bit better. It all sucks though because I just never know what kind of day I will have until I roll out of bed in the morning.
