Recapping my dates to show a timeline of my HSCT journey (and to remind myself of my dates!)
A quick review of my HSCT timeline.
I’m hoping to help give everyone an idea of time that it took for to get to where I am from that first NorthWestern email.
05/13/16: MRI showed that Tysabri was no longer working. Stopped Tysabri. No options left except Lemtrada or HSCT.
05/16/16: Called NW to ask if I could apply if I was having a relape
05/22/16: Sent initial email to NW
05/23/16: Contacted by NW to send paperwork/CDs
Waited because I got nervous and also my dad was having some bad vision problems that needed surgery.
09/07/16: Sent Paperwork and CDs to NW
09/13/16: Phone call from NW to come for evaluation.
09/20/16: Initial evaluation
09/21/16: Offered the treatment By Dr. Burt
Ty washout period was 6 months so I couldn’t start until Nov 13th at least. Also, insurance wanted more information to make their decision on whether to approve and pay for the treatment. NW had me do pre-testing early to give the insurance company more info. My insurance company paid for all the pre-testing. This was the period of time where I was fighting with insurance – HSCT was denied by Medical Mutual of Ohio and all three appeals were also denied.
12/30/16: NW calls me and suggests I apply for Part B Medicare, so I did.
01/01/17: Medicare Part B kicked in!
01/17/17: NW called with my dates
02/23/17: STEM BIRTHDAY!!!
Today is my first Neupogen shot. I will be taking one of these for the next 7 days to help my stem cells grow rapidly so that I have plenty for harvest time.
I decided on a belly shot today and now I wait and see it work its magic. I did take Claritin yesterday and today in order to hopefully lessen the bone pain that is common with this med.
From what I learned, apparently Neupogen causes a release of histamines and taking an antihistamine such as Claritin helps ease the possible bone pain side effect, as my stem cells grow in the bones that have the stem cell producing bone marrow. I never would have thought of Claritin helping but I was grateful for the heads up I received from some of the other patients who had met previously that had gone through this process. Here’s to hoping it’s a pretty painless next 8 days!