I’m pissed! I’m getting my last steroid infusion, and I’m am sitting next to someone who says that everyone who can walk shouldn’t abuse the handicap spots? Seriously!? I have a handicap placard because I have Multiple Sclerosis. Some days I walk better than others. He said people who are able to walk don’t have a right to the spots and just use their grandfather’s placard 😡😡😡
Today, I’m supposed to be non-weight bearing on my left foot because of my laceration. I have a podiatry appt tomorrow morning, but screw it I walked in with my cane and was parked so far away the from handicap spots. And I didn’t complain!!!
I don’t like judging people, so who are you to judge me for my “invisible” disability? Which isn’t invisible really. Would you rather see me in a wheelchair and then I can have your approval for my handicap spot, even though I didn’t even use one today.
Or you know what?
I’ll trade my disease with you any day so then you can have my handicap spot.
Let’s see how you feel after walking in my shoes!
Thanks steroids for adding fuel to my flame. I get riled up on steroids sometimes, Ugh.
*rant over*
I am off Gilenya for good because I was having bad, scary heart palpitations and am currently relapsing with loss of vision in both eyes, cog fog and weakness in my left leg.
I have an MRI tomorrow afternoon, after which I am starting a three day course of IVSM again.
Then I have a washout period of no medication and will be likely starting Tysabri.
Thus far, I have had Copaxone, Avonex, Gilenya, 2 CCSVI procedures, LDN, and 8 IV solumedrol infusions.
I am so ready for something to give, finally for the positive.
I am having issues reading stuff on the computer because parts of words blur out on me. I try to go back and look to see if I wrote everything correctly, and I see weirdness – those of you who experienced Optic Neuritis would understand.
It’s basically as though you are trying to look at yourself in the mirror of a steamy bathroom. I am seeing my opthalmologist tomorrow to get my vision checked and to have my visual fields done. Right now, I am not sure it’s ON but rather the large lesion in my occipital lobe acting up again
I have to get off the computer now for a bit because my eyes are going wonky and starting to hurt.
