Tag Archives: Solumedrol

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And the verdict is…

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As I wrote yesterday, stress has consumed my life so much in the past two days that today I am paying for it badly.

My eyesight has suffered horribly for it. I am seeing blurry and patchy and my right eye is really bad. At least my laptop has a cool thing on it where I can enlarge all the fonts on these pages with one click of my touch pad.

I had to own up to my eye issues and call my neurologist who immediately gave me my verdict of…

5 days of IV steroids

This has put a little huge dent in my plans this weekend.  My youngest’s party which was supposed to be going on this Saturday afternoon, but is currently postponed until April.  I just physically cannot make this party work in two days especially if I can’t see well and am on heavy steroids.  Plus I don’t want to have a nurse come out to the house and infuse me in the middle of my son’s birthday party.

I am so ready to be feeling normal and stable.  Stable is a word that means the world to me right now.  Let’s hope 5 days of IV steroids will work their magic on me.

*fingers crossed*

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Losing sight of what is important in life

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There comes a time when you lose sight of what makes your life special, interesting, amazing, and you just plug through day by day feeling down and low. I haven’t been blogging because my mom always said “if you have nothing good to say, don’t say anything at all”. This blog was meant to be about my children and has started to become a blog about my life with a bit of kid stuff thrown in. I am not sure if I should keep this blog as a “mommy blog” and start another one which chronicles my life with disability, or if I should just keep everything in here. I’ll sleep on it for now…

Now, for the literal meaning of this post.

I am losing my eyesight. Makes it tough to blog on the computer. My vision is blurry, pachy, and just messy all together. It’s difficult to see the computer screen most of the time and it takes me about twice as long to read what I type or what others type. I just got off of a 3 day IV solumedrol infusion and have not had any improvement in my eyesight yet. I had to stop the MS medication I was on, on February 19th, because it obviously wasn’t working. I had new activity on my MRI and my eyesight was getting worse. On top of that I was starting to have heart palpitations, which as a rare side-effect of this medication (Gilenya) can kill ya possibly. Not a very good situation at all.

There is good news though!!!

So, the good, amazing news is that I have been accepted into the only U.S. Stem Cell study for M.S.

This is big!

This is huge!

Here is a link to the study. I already received the paperwork and will be scheduling my surgical removal of bone marrow sometime in end of May. This is such a wow moment for me. I am so incredibly excited and I hope to be able to be on the forefront of hopefully reversing and/or curing Multiple Sclerosis as a part of this research study.

Disability, Illness, Insomnia, Optic Neuritis, Relapse, Relapse, Steroids, Symptoms

My right eye is bothering me… again

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I hope it’s just a tiny hiccup in my MS following my flu… The IV steroids are working great though. Yes, it’s unfortunate, but I’m on another round for an Optic Neuritis relapse.

I’m already much better! Now, if only I could sleep – steroids keep me up and wired. I’m just about to resort to taking Ambien.

The 3 things you definitely need when doing IV steroids are Ambien, Pepcid, and Winto-Green Lifesavers (to keep the taste of pennies in your mouth away).

I have to try to go to bed now.
Good night…