My first video on here. I know I look tired and worn out. It’s been a long day!
Trying to sleep after IV steroids, dexamethasone, and Excedrin is a little rough. So I took an Ambien and it’s starting to kick in. Enjoy the video post!
#HSCT #stemcells #CureMS #nochemonocure #drburt
Sorry it has been a while for my latest update but I’ve been having some problems logging into my site. I can log in on my phone for now, so here we go…
Steroids are awesome. For me anyway. It’s as though I feel closer to “normal” after I get an infusion. Granted I can’t sleep for three days, but my pain is mostly gone and my walking looks and feels better.
As far as Northwestern goes, the pre-authorization request from Chicago was finally received by my insurance company. So, now it’s just a wait and see thing. Once we hear back then I should be getting my dates to start Mobilization.
My fundraiser has been going incredibly well! I am truly amazed as to how many wonderful people I have supporting me through this, financially, but most importantly emotionally. Not having to worry so much about the cost is the best Christmas and 40th birthday present ever! If I start mobilizationin January then my stemmie birthday will possibly be on my actual 40th birthday. Kinda cool!
I’m pissed! I’m getting my last steroid infusion, and I’m am sitting next to someone who says that everyone who can walk shouldn’t abuse the handicap spots? Seriously!? I have a handicap placard because I have Multiple Sclerosis. Some days I walk better than others. He said people who are able to walk don’t have a right to the spots and just use their grandfather’s placard 😡😡😡
Today, I’m supposed to be non-weight bearing on my left foot because of my laceration. I have a podiatry appt tomorrow morning, but screw it I walked in with my cane and was parked so far away the from handicap spots. And I didn’t complain!!!
I don’t like judging people, so who are you to judge me for my “invisible” disability? Which isn’t invisible really. Would you rather see me in a wheelchair and then I can have your approval for my handicap spot, even though I didn’t even use one today.
Or you know what?
I’ll trade my disease with you any day so then you can have my handicap spot.
Let’s see how you feel after walking in my shoes!
Thanks steroids for adding fuel to my flame. I get riled up on steroids sometimes, Ugh.
*rant over*
