My second day of IV steroids is officially done. I have been suffering with a ton of pain and fatigue and was due for my 6-8 week steroid infusion.
I am taking IV steroids every 6-8 weeks now in order to prevent a relapse from happening, while I wait for the stem cell treatment to start. It just so happened that I was not doing well, so the steroids came in handy at this particular time.
I’m feeling better already. Way less pain and no bad fatigue. Yay!!
This has just been going on for way too long! I am in so much pain every day, mostly from spasms. I don’t know if I’d really call in unbelievable… but damn this hurts like hell and I can only take so many meds. Ugh!
Guess it’s time to give my neuro a call to hopefully get some IV steroids for some relief!
I am not very good at waiting especially when my left arm is getting weaker and I’m having blurry vision. I need my next set of steroids but I think my neuro is going to be nervous that I continue to refuse Lemtrada.
I wish I had an evaluation date so that I can tell my neuro that I’m legitimately moving in the HSCT direction. She’s good with me being in the study, but she feels my RRMS is too aggressive to wait too long. She agreed to do monthly IV pulse steroids, which is something for now. I just wish I had that date for evaluation. I think it may put the mild Lemtrada pressure to rest.