I really wanted to post about something specific tonight, so much so, that I thought about it for hours in bed while I couldn’t sleep last night. However, today has been a crazy busy day and being sleep deprived and my eyes giving me grief, I am limiting myself to this few uninteresting lines of blurry dribble.
Tomorrow is a new day.
My eyes just need to keep healing.
I want to be able to see somewhat normally again.
That is all.
As I wrote yesterday, stress has consumed my life so much in the past two days that today I am paying for it badly.
My eyesight has suffered horribly for it. I am seeing blurry and patchy and my right eye is really bad. At least my laptop has a cool thing on it where I can enlarge all the fonts on these pages with one click of my touch pad.
I had to own up to my eye issues and call my neurologist who immediately gave me my verdict of…
5 days of IV steroids
This has put a little huge dent in my plans this weekend. My youngest’s party which was supposed to be going on this Saturday afternoon, but is currently postponed until April. I just physically cannot make this party work in two days especially if I can’t see well and am on heavy steroids. Plus I don’t want to have a nurse come out to the house and infuse me in the middle of my son’s birthday party.
I am so ready to be feeling normal and stable. Stable is a word that means the world to me right now. Let’s hope 5 days of IV steroids will work their magic on me.
*fingers crossed*
I’m so incredibly tired and sleepy tonight. I started back on my Gilenya today and am wondering if it’s making me more sleepy.
I have been off of it for the past 10 days. I had developed a bad cough, and they weren’t sure if it was a side-effect of the Gilenya or a remnant cough from my illness. The cough finally went away over this past week, and now I am back on the med.
Hopefully, the cough stays away, else I will have to go off Gilenya permanently.
Back at Christmas time I was off of it for 4 days because I was sick and then went back on until this latest break.