Tag Archives: Disability

HSCT

Walking after 10 Years Thanks to HSCT for MS (BBC’s Story)

Leave a comment

I wanted to share The BBC’s amazing story of Roy Palmer, who after having HSCT treatment in Sheffield, England, is now walking (and dancing) after being confined to his wheelchair for ten years due to his Multiple Sclerosis.

Walking again after ten years with MS

Many people have been messaging me these past few days with his story, asking me if this is the same treatment that I had done.

It is indeed the same treatment!

I was blessed to receive HSCT in Chicago at Northwestern with Dr. Richard Burt. Both Chicago, Illinois and Sheffield, England were part of the Multi-center Phase 3 Clinical Trial that provided this treatment to people with Relapse Remitting Multiple Sclerosis. This treatment has been truly life-changing for me, as it has been for Mr. Palmer; as well as hundreds more of us who have received this treatment.

Please feel free to comment or send me any questions to my email anna@endmyms.com and I will do my best to answer them or steer you in a direction to where you can go for more information. Thank you to everyone who has been following my journey here on my blog. Thank you to those who believed in me, helped me on my journey, and believed in this treatment. I am feeling incredible and am running and dancing around again just like Mr. Palmer. HSCT is finally getting the much deserved recognition that it deserves. My wish and prayer is that everyone for whom this treatment may help is able to have the option to receive it someday. The sooner the better! Many don’t have time to wait and are out of options. There is hope in HSCT for many.

HSCT

3rd day of chemo

Leave a comment

It’s been a pretty good day. This early morning I was woken a few times for medications, blood draw, and EKG. Got the rest of my head shaved before my shower because it was falling out in a pretty funky pattern LOL


Later Dr. Burt came for a visit and said everything looked good so far. I then went for a walk in the hallway with my cane. Three laps with 3 rests! Woo hoo! (17 laps is a mile) Then I got all my premeds before starting my chemo at 11. Took a nice nap and then did another 3 laps with 3 rests. Now I’m fighting a bit of nausea and just got meds for that. Still have IV rATG running until midnight tonight. All in all everything is going very well today!

Disability, Pre-HSCT

Some people just don’t get it!!

3 Comments

I’m pissed! I’m getting my last steroid infusion, and I’m am sitting next to someone who says that everyone who can walk shouldn’t abuse the handicap spots? Seriously!? I have a handicap placard because I have Multiple Sclerosis. Some days I walk better than others. He said people who are able to walk don’t have a right to the spots and just use their grandfather’s placard 😡😡😡

Today, I’m supposed to be non-weight bearing on my left foot because of my laceration. I have a podiatry appt tomorrow morning, but screw it I walked in with my cane and was parked so far away the from handicap spots. And I didn’t complain!!!

I don’t like judging people, so who are you to judge me for my “invisible” disability? Which isn’t invisible really. Would you rather see me in a wheelchair and then I can have your approval for my handicap spot, even though I didn’t even use one today.

Or you know what?
I’ll trade my disease with you any day so then you can have my handicap spot.
Let’s see how you feel after walking in my shoes!

Thanks steroids for adding fuel to my flame. I get riled up on steroids sometimes, Ugh.
*rant over*