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Two more days until my Stemmie Birthday!!!

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​Had a relatively uneventful day but busy morning. Everything seems to start at 4:30am here… vital signs, bloodwork, early morning meds, orthostatics, shower, meeting with the transplant team at 8:45,  hanging the chemo, then steroids, then rATG.
I was able to sleep on and off through a lot of the Cytoxan but did end up with some wicked nausea and a headache, with which he nurses helped me with some anyinausea meds and Tylenol. 

After getting up I was so blessed to have three lovely ladies come visit me, two of whom are shortly starting the process that I am going through currently. It’s so great to have such a nice “stem family” as we call it to share our experiences. Everyone is different in their own special way, but we are all fighting for a common goal… to CURE our Multiple Sclerosis!

Tonight my last bag of meds ends at 1:15am, so I’ll be woken up by that and then the morning will begin again at 4:30!  However, I am done now with the Cytoxan and will be only getting steroids and rATG.  And then my Stem Cell Birthday arrives on Feb. 23rd.  I am so incredibly excited!!!

So far so good! Have a great night everyone! Will try to update again tomorrow!

#HSCT #CureMS #DrBurt #stemcells #nochemonocure

HSCT

3rd day of chemo

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It’s been a pretty good day. This early morning I was woken a few times for medications, blood draw, and EKG. Got the rest of my head shaved before my shower because it was falling out in a pretty funky pattern LOL


Later Dr. Burt came for a visit and said everything looked good so far. I then went for a walk in the hallway with my cane. Three laps with 3 rests! Woo hoo! (17 laps is a mile) Then I got all my premeds before starting my chemo at 11. Took a nice nap and then did another 3 laps with 3 rests. Now I’m fighting a bit of nausea and just got meds for that. Still have IV rATG running until midnight tonight. All in all everything is going very well today!

HSCT

Day -5 Update – Chemo is a trip

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Day -5

Yesterday I received Rituxan and tolerated it very well. Super slow easy day.

Today is one of the “heavy” chemo days, of which I have three more days like this, so a total of 4 “heavy” chemo days.

Today’s first chemo, Cytoxan, was at 11:15-1:15. Then 1000mg of steroids for an hour. And now I’m on another medication, nicknamed rabbit, rATG, which significantly reduces the number of circulating T-cells. It also makes food taste gross but I’m still eating right now. No nausea. No vomiting. No dizziness.

So far so good! Now I am going to try to get some much needed sleep!