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Hello ER

Oh what fun it is to be in the ER on a Sunday night!

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Suddenly I’m shivering!

I realized this afternoon, that I was incredibly tired.  This is not an uncommon side effect of my infusion, so I thought nothing if it and just kept on keeping on.  Then like a light, I was out, sitting up in a chair.  I fell asleep – like in a narcoleptic 3 seconds!  When I woke up, I knew I was sick. I felt pain in every joint and muscle of my body, even my hair hurt! I felt freezing cold, was shivering, my throat was sore, and my eyes were burning. It was so sudden. Everything at once.

So now I’m wondering if I have the flu! Argh!!!! I’m miserable. Good thing I made chicken soup two days ago.  It’s hopefully going to help ease this crud.  If I am much worse tomorrow I will need to make a call to my doctor since I got my infusion yesterday and it can have immunosuppressant effects. Ugh!

My Red Line

You think you’re out of the woods at least for a day, week, even an hour – and them WHAM the pain hits in your left leg down along the back of it making hard to walk and just plain uncomfortable to move.

I hate spasms! I especially despise the ones that hurt – a lot.

It sucks because I need to get things done but if I do too much, too fast without adequate rest as I go along, I reach my red line and something hits me – either loss of vision, weakness in my left leg and arm, dizziness, loss of balance or painful spasms. Ugh! It’s a guessing game to know how close I am to reaching my red line. It changes daily. Thankfully the issues resolve after a time of rest but that red line comes right back and becomes easier to hit after I’ve already reached it that day.

I need to sleep more. I need to go to bed at a decent hour and get more rest. But it’s hard because it takes so much to simply fall asleep. Insomnia and my mind running around makes me crazy! I need naps, but I don’t take them because I think I should be doing something productive. Plus it later ruins the plan to try to get to bed earlier. Arg! So frustrating!

Just needed to vent! Sorry…