I just had one of these – scariest thing that has ever happened to me, especially since I am currently going through ON in both eyes. I thought I was done for – I thought my vision in both eyes was gonna be lost.
Unreal how scary these things are – after exhausting Dr. Google, I find this page and it’s the only thing I could find that describes describes it perfectly
Ocular Migraine
Monthly Archives: July 2011
Hoping for a Vascular Tune-up
Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!
I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength.
Hoping to get those back in check following round two.
I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.
I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids.
I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.