CCSVI did not stop my MS

I am so bummed. My eyes were starting to bother me right before my second CCSVI procedure. I could tell that I was losing my eyesight (in both eyes!) and was hopeful that I would feel better after my procedure.

Day 3 IVSM for my MS vision issues

I can only half see – just enough to type slowly on the computer. I’m not sure if this is Optic neuritis in both eyes? Or if it is an occipital lobe lesion.

Today is day three of my IV Solumedrol. I’m starting to retain water which makes my eyes swell up and feel worse. Good grief. I think I may have go on MS meds again. 🙁

Second CCSVI Procedure

Azygous is still flowing well, but LIJ renarrowed to 80% and RIJ renarrowed to 50%. All opened back up and flowing again. My valves apparently don’t work correctly, so if this second veno does not hold, I may go into a clinical trial that was just IRB approved for bypass grafting around the stenosis. But first lets just pray the second one holds!

Number two done!

Back in Albany NY

Woot woot!


Here I am in Albany!

I’ll be heading to the Vascular Pavilion tomorrow at 8am, and I will be meeting with the doctor first for a complete office visit. Then will be having the venogram sometime tomorrow, but not sure exactly when yet. I will keep everyone posted via mobile FB.