Tag Archives: Medicare

Another big timeline recap

Recapping my dates to show a timeline of my HSCT journey (and to remind myself of my dates!)

A quick review of my HSCT timeline.
I’m hoping to help give everyone an idea of time that it took for to get to where I am from that first NorthWestern email.

05/13/16: MRI showed that Tysabri was no longer working. Stopped Tysabri. No options left except Lemtrada or HSCT.

05/16/16: Called NW to ask if I could apply if I was having a relape
05/22/16: Sent initial email to NW
05/23/16: Contacted by NW to send paperwork/CDs

Waited because I got nervous and also my dad was having some bad vision problems that needed surgery.

09/07/16: Sent Paperwork and CDs to NW
09/13/16: Phone call from NW to come for evaluation.
09/20/16: Initial evaluation
09/21/16: Offered the treatment By Dr. Burt

Ty washout period was 6 months so I couldn’t start until Nov 13th at least. Also, insurance wanted more information to make their decision on whether to approve and pay for the treatment. NW had me do pre-testing early to give the insurance company more info. My insurance company paid for all the pre-testing. This was the period of time where I was fighting with insurance – HSCT was denied by Medical Mutual of Ohio and all three appeals were also denied.

12/30/16: NW calls me and suggests I apply for Part B Medicare, so I did.
01/01/17: Medicare Part B kicked in!
01/17/17: NW called with my dates
01/27/17: Mobilization
02/06/17: Harvest
02/17/17: Admit
02/23/17: STEM BIRTHDAY!!!

#hsct #stemcells #cureMS #nochemonocure #drburt #medicalmutual #medicare #treatment #timeline

Happy Birthday! I have my dates !!!

Today I turned 40 and I am my hopefully awaiting my new incredible life in my 40’s! 

I got my dates today! It was the most amazing feeling to know that I have a start date, and I will be going through this amazing, life-changing experience!

Mobilization starts Jan 27

Harvesting Is Feb 6 (7th too if needed)

Then home to rest until…

Feb 16: (Day -6) admission as an inpatient

Feb 23: (Day 0 !!!) my stem cell infusion and start of my new life. 
Thank you to everyone for your support, kindness, prayers, and well wishes. I couldn’t have done this without all of you!;
What an amazing 40th Birthday present!

One step closer

I received a fantastic email today from my nurse at Northwestern! Medicare is paying for my treatment, and Northwestern sent me the new contract to sign, which I immediateky printed out, signed and faxed back.

Tomorrow I send in my Medicare payment deposit and…

Tomorrow I will likely have my official treatment start dates!

Tomorrow is my 40th Birthday!

17 is my lucky number…

And Tomorrow I will be the happiest woman in the world because I am moving one step closer

To ending my MS.