Tag Archives: DMD

Time to start blogging again…

Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.

Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.

I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.

Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!

Rockstar Parking

Unfortunately, it sometimes comes to this.

As of right now it’s in my glovebox, but it’s there in case I am having a really bad day.  Some days I just don’t walk as well as I used to, especially toward the end of the day. I still have yet the balls to use it.

Hopefully, we have some new and interesting things coming up on the horizon which can fix all of this.  I may just be going on a health-related trip soon, I hope.  Keeping my fingers crossed that this may be my answer and that I will never have to use that big blue hanging placard to get my rockstar parking.  I do all my Christmas shopping online anyway.