Category Archives: Fatigue

The chronically fatigued insomniac

I AM that oxymoron: the chronically fatigued insomniac.

One thing, which I know would probably make me healthier and feel better, would be for me to go to bed at a decent hour. Not to mention I have heard rumors that a solid 8-9 hours of sleep helps prevent you from aging. Being as that I am hitting the half way mark between 30 and 40 in January, and I am beginning to see gravity and life slowly affect my outward appearance. Also, my inner soul is starting to tire.

I have always been a night-owl, but my youth and graduate studies tended to keep me from needing more than 4-6 hours of sleep a night. I did fine with nights of no or little sleep before the age of 25, and then it rolled over to having two boys in a span of 20 months, which precipitated the “lack of sleep” issue. Again, I did ok with that.

And now, I have two darling boys that go to bed without complaints at 8pm, no questions asked. I truly am lucky and blessed that they welcome bedtime as easily as they do. I wonder if when this perfection will end.

I, however, stay up for hours after they’ve gone to bed. Sometimes I am doing useful things, like getting clothes ready for the next day of school, making lunches, loading the dishwasher, and folding a load of laundry. Often though I get sucked into my DVR that I only watch at night because my boys, including my husband, are soundly asleep in bed and they really have no interest in watching Project Runway or Top Chef.

My question is if anyone out there sets a curfew for themselves?

I am usually asleep by 1am. Everyday when I wake up exhausted from lack of sleep, I tell myself that I will go to bed earlier today, and I never do. The few times I have tried, I have failed miserably. I lay in bed wide awake with my mind racing a million miles a minute. I am on a first name basis with Melatonin and Ambien right now.

MS is a funny (as in perplexing) disease. It’s as though I cannot fall asleep at night, then I wake up exhausted in the morning, trudge through the day like a zombie, have to sit down every few minutes because my body fatigues so easily, then cannot fall asleep to take a nap when given the opportunity, and am so fatigued until the cycle repeats itself.

Welcome back SAHMhood

I officially have more time now to do my most important job, which is be a mom.

I have more time to cook, clean, play with my kids, take them places, take more pictures of them, volunteer at school, eBay things I don’t need or use anymore… AND I have more time to blog! – the list can go on and on. I am going to be a good stay-at-home mom again. And not only that, I intend on being a FUN mom. But although I have all this time, my body doesn’t play nice and tells me to reel it in. I have all these great ideas and intentions of fulfilling them, but I’m limited by… well, everything right now.

I just started my new medication, and it will be one week tomorrow. No real change as of yet, but some new symptoms coming on as a result of me trying to do too much. By the end of the day I am done, finshed, caput. I just want to try and catch up on life. And I will. I have to.

I remember this SAHM gig when my boys were little – and now I remember how much I loved it!

Hoping for a Vascular Tune-up

Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!

I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength.
Hoping to get those back in check following round two.

I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.

I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids.
I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.