I realized this afternoon, that I was incredibly tired. This is not an uncommon side effect of my infusion, so I thought nothing if it and just kept on keeping on. Then like a light, I was out, sitting up in a chair. I fell asleep – like in a narcoleptic 3 seconds! When I woke up, I knew I was sick. I felt pain in every joint and muscle of my body, even my hair hurt! I felt freezing cold, was shivering, my throat was sore, and my eyes were burning. It was so sudden. Everything at once.
So now I’m wondering if I have the flu! Argh!!!! I’m miserable. Good thing I made chicken soup two days ago. It’s hopefully going to help ease this crud. If I am much worse tomorrow I will need to make a call to my doctor since I got my infusion yesterday and it can have immunosuppressant effects. Ugh!
Had my 23rd infusion today. Next month I will “celebrate” my two year Tysabri anniversary. I never wanted to go on this drug but it has saved my quality of life and to a big extent, my life as a whole. So for that I am extremely thankful. I am so happy that I can be a good mother to my wonderful boys, wife to my amazing husband, and daughter to my truly devoted parents.
Wish I could say more but my fatigue plus the side-effect of Tysabri “sleepiness” is lulling me to bed… Love you all!
Ugh! I woke up today with blurry eyes, especially the right, and my legs are pretty crampy. Damn MS! It always starts rearing its ugly head about a week before my next Tysabri infusion. I will be getting it on Friday – wish it was sooner.
