I am going up the garage steps and my left leg decides not play along. I catch myself and say “ow, my toe. At least I didn’t totally fall!”
So I try waking on it and it’s not having it. I look down and suddenly I see my foot in a pool of blood. So I assess the situation while trying to cut down on my blood clean up. (Yes, you parents undertande that one LOL)
So what do I do? I get to a bathroom hobbling and wondering how to yell for help… at 1am!
Well I find my wound kit. (Again parents?) I pull out my saline wash, steri strips, and I’m gonna make it work. I hope I won’t need stitches. It’s not pretty but it’ll do for the night.
I initially did not meet the criteria for Dr. Burt’s Study at Northwestern because I hadn’t had a relapse in over 3 years. I re-submitted right after I had a relapse in May. Following that I quickly received the paperwork for the possibility of getting invited to come for an evaluation for the study.
I sent my initial email to Northwestern on June 22nd and was contacted within a day to send my Eval paperwork to them. However, I sat on it a bit because my father was going through eye surgery.
Once I knew that my dad was going to be ok, I sent over my paperwork on Sept 7th, I and received the news on Sept 13th, that they wanted me to come come for a formal evaluation! Once they received my medical records a few days later, they asked me to come the next week, Sept 20th and 21st!
I was accepted for treatment by Dr. Burt on a compassionate basis, as I had failed all of my medications and am still showing activity of my RRMS.
This has just been going on for way too long! I am in so much pain every day, mostly from spasms. I don’t know if I’d really call in unbelievable… but damn this hurts like hell and I can only take so many meds. Ugh!
Guess it’s time to give my neuro a call to hopefully get some IV steroids for some relief!
