I’ve finally stopping crying tears of joy so I can post now!
All I can say is this is truly incredible that I have been accepted for the stem cell transplant at Northwestern in Chicago. I feel so blessed to be given the opportunity to cure and stop my disease progression. Thank you to everyone for your well wishes and prayers. I believe the man upstairs was listening.
My journey will most likely begin in November, since I have to wait until mid November to meet the 6 month washout period from my prior medication. My Ty washout is done November 13th because my last infusion was May 13.
Again, thanks to everyone for the support and love ❤️ especially my sweet husband and my parents. I couldn’t do this without you!
I am not very good at waiting especially when my left arm is getting weaker and I’m having blurry vision. I need my next set of steroids but I think my neuro is going to be nervous that I continue to refuse Lemtrada.
I wish I had an evaluation date so that I can tell my neuro that I’m legitimately moving in the HSCT direction. She’s good with me being in the study, but she feels my RRMS is too aggressive to wait too long. She agreed to do monthly IV pulse steroids, which is something for now. I just wish I had that date for evaluation. I think it may put the mild Lemtrada pressure to rest.
