My brain still isn’t playing nice

It has been a little over a month since I got my Cleveland Clinic stem cells infusion and have been doing relatively well. My 1 month follow up was on Oct 31 st. I have felt that my walking was a bit better but my spasms have been progressively getting worse. I wasn’t going to try to say whether the stem cells were helping yet or not because I know that it can take a while for things to start healing.

I got a phone call from my research team at Cleveland Clinic yesterday asking me how I was feeling. I mentioned that my spasms were pretty bad but that overall everything seemed status quo (I didn’t mention the funky eye issue or the clumsy hand problem I had the day before, because to me those are very minor transient symptoms in my view). Anyway, they told me that my latest MRI showed new lesions and they needed to see me ASAP for a relapse assessment.

So, here I am today at the Mellen Center. My neuro let me know that I have several active lesions, one of which is on the left side of my brain. After assessment it was obvious that I had some clumsiness of my right side (which is new for me) and a bit of visual field loss on the left side of my vision. The decision was made to put me on IV steroids starting today to nip this in the bud.

My neuro said that this is about the time that they see the stem cells starting working. So, it is quite possible that I would be a lot worse off symptomatically right now if it weren’t for the stem cells. Nobody really knows.

I am just bummed that I am having yet another relapse, albeit a mild one, and am about to receive my 13th steroid infusion since Jan 2010. It’s so disheartening because I have millions of stem cells circulating in my body but I am still not able to stop the MonSter from rearing it’s ugly head 🙁

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