I am not very good at waiting especially when my left arm is getting weaker and I’m having blurry vision. I need my next set of steroids but I think my neuro is going to be nervous that I continue to refuse Lemtrada.
I wish I had an evaluation date so that I can tell my neuro that I’m legitimately moving in the HSCT direction. She’s good with me being in the study, but she feels my RRMS is too aggressive to wait too long. She agreed to do monthly IV pulse steroids, which is something for now. I just wish I had that date for evaluation. I think it may put the mild Lemtrada pressure to rest.