Ugh! I woke up today with blurry eyes, especially the right, and my legs are pretty crampy. Damn MS! It always starts rearing its ugly head about a week before my next Tysabri infusion. I will be getting it on Friday – wish it was sooner.
Tag Archives: Spasticity
6 Months Post Stem Cell Implantation
We are coming upon my six month post-stem cell infusion visit. My goodness, time has flown!
I continued having a lot of trouble with eyesight in my left eye since November and went through three 5 day IV infusions with no improvement in my eyesight 🙁 Thus, I chose to do something I never thought I would do and started on the medication Tysabri
In 5 days I will be having my 4th Tysabri infusion.
And amazingly my eyesight has gotten much better – not directly due to the Tysabri, but simply because my body has stopped my continuous relapse of Optic Neuritis, and I have gotten time to have my body slowly try to heal itself.
I have noticed that I feel better on the Tysabri but about 1 week before the infusion my body reminds me that I need my infusion. In fact, today and for the past three days I have noticed some increased difficulty walking, increased spasms and increased fatigue. It’s weird… I feel like I NEED my Tysabri to feel better.
5 days and counting…
My stem cells are still circulating in my body and still need time to do some healing. At least now they have a chance since my relapses have thankfully stopped for the time being.
My last MRI was not good
I had my one month post stem cell followup on Halloween and had an MRI done as well as a whole host of other tests. I got a call a few days later asking me if I felt ok. Oddly, I asked why and was told that there was new activity on my MRI. Apparently I had a few lesions that popped up, including a pretty large one on the left side. Surprisingly, the only symptom that had been bugging me was the spasticity in my legs. So, in order to quiet this lesion, I was put on a 5 day IV steroid infusion… with no taper (that sucked).
I had my last IV steroid infusion on November 7th.
Then on November 9th my left eye decided to get very blurry. It felt like optic neuritis
My stupid eye is bad again and in pain! ARG! This is so frustrating!
Going to see my opthalmologist this afternoon, and will see what he says. Also, have my 2 month followup appointment for my stem cell study on Wednesday so will be getting an MRI and an entire workup.
Come on stem cells… you gotta be working somehow, right? I am thinking maybe this would be a lot worse if I hadn’t gotten you guys in my system.