Happy Easter to everyone! Here’s a short, post-Easter festivities update!
#HSCT #stemcells #drburt #multiplesclerosis #physicaltherapy #occupationaltherapy #easter #ibeatms
Tag Archives: Sleep
Two more days until my Stemmie Birthday!!!
​Had a relatively uneventful day but busy morning. Everything seems to start at 4:30am here… vital signs, bloodwork, early morning meds, orthostatics, shower, meeting with the transplant team at 8:45, hanging the chemo, then steroids, then rATG.
I was able to sleep on and off through a lot of the Cytoxan but did end up with some wicked nausea and a headache, with which he nurses helped me with some anyinausea meds and Tylenol.
After getting up I was so blessed to have three lovely ladies come visit me, two of whom are shortly starting the process that I am going through currently. It’s so great to have such a nice “stem family” as we call it to share our experiences. Everyone is different in their own special way, but we are all fighting for a common goal… to CURE our Multiple Sclerosis!
Tonight my last bag of meds ends at 1:15am, so I’ll be woken up by that and then the morning will begin again at 4:30! However, I am done now with the Cytoxan and will be only getting steroids and rATG. And then my Stem Cell Birthday arrives on Feb. 23rd. I am so incredibly excited!!!
So far so good! Have a great night everyone! Will try to update again tomorrow!
#HSCT #CureMS #DrBurt #stemcells #nochemonocure
Day -5 Update – Chemo is a trip
Day -5
Yesterday I received Rituxan and tolerated it very well. Super slow easy day.
Today is one of the “heavy” chemo days, of which I have three more days like this, so a total of 4 “heavy” chemo days.
Today’s first chemo, Cytoxan, was at 11:15-1:15. Then 1000mg of steroids for an hour. And now I’m on another medication, nicknamed rabbit, rATG, which significantly reduces the number of circulating T-cells. It also makes food taste gross but I’m still eating right now. No nausea. No vomiting. No dizziness.
So far so good! Now I am going to try to get some much needed sleep!