It’s just before 11pm and I’m actually in bed ready to go to sleep!
I fought through my fatigue today and did not nap during the day. Also, since we moved our clocks backwards I am more tired now since my body still feels as though it’s almost midnight. This might be a possible reset of my internal sleep clock! That would be awesome!
That’s my MS…
Or at least a big part of it.
I never understood why this happens. It’s like I’m caught in a catch-22. If I am fatigued during the day, I end up taking a nap. These naps are not your typical “power naps” but rather 3-4 hour hits of deep sleep. Then later I am still fatigued and not rested. I tell myself that I want to go to sleep early (at least by midnight – yes, that is early in my turned-upside-down world) and hopefully start to change the cycle. I was always a nightowl but this is ridiculous. Three nights this week, I went to bed by 1am and still did not fall asleep until 3! Even when I take my Lunesta, it still doesn’t help.
Melatonin, however, seems to help a bit and when I took it last night I was able to fall asleep rather quickly – within an hour. So, I may have this be my go-to and see if it helps start to break the cycle.
My second day of IV steroids is officially done. I have been suffering with a ton of pain and fatigue and was due for my 6-8 week steroid infusion.
I am taking IV steroids every 6-8 weeks now in order to prevent a relapse from happening, while I wait for the stem cell treatment to start. It just so happened that I was not doing well, so the steroids came in handy at this particular time.
I’m feeling better already. Way less pain and no bad fatigue. Yay!!
