Category Archives: Medications

HSCT, Mobilization, Neupogen

Injections have begun!

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Today is my first Neupogen shot.  I will be taking one of these for the next 7 days to help my stem cells grow rapidly so that I have plenty for harvest time.

I decided on a belly shot today and now I wait and see it work its magic.  I did take Claritin yesterday and today in order to hopefully lessen the bone pain that is common with this med.

From what I learned, apparently Neupogen causes a release of histamines and taking an antihistamine such as Claritin helps ease the possible bone pain side effect, as my stem cells grow in the bones that have the stem cell producing bone marrow.  I never would have thought of Claritin helping but I was grateful for the heads up I received from some of the other patients who had met previously that had gone through this process.  Here’s to hoping it’s a pretty painless next 8 days!

And here I go chanting!  GROW STEMMIES! GROW!

#hsct #stemcells #cureMS #nochemonocure #drburt

Fatigue, HSCT, Mobilization, Neupogen

Tomorrow Neupogen!

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My MRI on Thursday showed that I have more progression and activity of my MS. The MRI showed new and old active lesions, so I ended up having two days worth of IV steroids during the start of my Mobilization.

 I had my chemo on Friday and am recovering with a bit of fatigue and some sore muscles. I have been sleeping a lot but I am feeling pretty good.  

Tomorrow at 7am I begin my Neupogen shots every morning until February 6th. I wish I were updating more but I’m sleeping quite a bit. Tomorrow we’ll see how I feel once I start my shots!

#hsct #stemcells #cureMS #nochemonocure #drburt

Medications, Relapse, Steroids, Tysabri

Time to start blogging again…

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Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.

Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.

I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.

Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!