Category Archives: Gilenya

I am really quite Sick

I am really sick. I saw my neuro today and we are continuing my disability until end of March where we will reassess and likely go long term.

I have to sleep on the damn couch because I don’t want to keep my hubby all night with my insane coughing fits.

And speaking of sleep we are working on trying to get me to have more restful sleep at night. So, I am gonna sign off and try to go to bed before midnight.

So, goodnight everyone!

Falling

I completely face-planted on my cement steps going out to my garage.  My left leg decided it would not go up the steps, and I bit it hard.  I am surprisingly sore everywhere and have a big lump on my left shin.

So far, Gilenya is working – I have not had any relapses since starting it, but the damage that was done from my prior flairs hasn’t gotten much better.

MS rears it’s ugly head… Again!

Ay caramba!
Oi vey!
Good grief!
Jesus Maria!

I am so tired of feeling bad. I’m incredibly fatigued in general. My legs are heavy – it’s tough to move around as much as I would like to. I’m limping on the left if I move around a lot. My right eye is bothering me again. My left arm is dis-coordinated. I’m having a bit of trouble finding words. This is so incredibly frustrating!

Although today is better than yesterday and the day before and the day before, so it goes to show you how bad things have been since last Friday.

Please let Monday come soon, and pray that Gilenya works for me! I need some stability in my life and stability with this disease!