Category Archives: Weakness

Falling

I completely face-planted on my cement steps going out to my garage.  My left leg decided it would not go up the steps, and I bit it hard.  I am surprisingly sore everywhere and have a big lump on my left shin.

So far, Gilenya is working – I have not had any relapses since starting it, but the damage that was done from my prior flairs hasn’t gotten much better.

Hoping for a Vascular Tune-up

Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!

I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength.
Hoping to get those back in check following round two.

I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.

I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids.
I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.