I completely face-planted on my cement steps going out to my garage. My left leg decided it would not go up the steps, and I bit it hard. I am surprisingly sore everywhere and have a big lump on my left shin.
So far, Gilenya is working – I have not had any relapses since starting it, but the damage that was done from my prior flairs hasn’t gotten much better.
Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!
I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength. Hoping to get those back in check following round two.
I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.
I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids. I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.