Well, I just plain feel like crap.
I want to enjoy my 2nd venoplasty, but I can’t shake this ON. Day 4 today for IVSM. I may be off of work for at least another week, because I can barely see out of my right eye. Left eye is a bit better, but it’s tough reading and writing – gives me a headache.
Gonna go rest my eyes now. Will be talking with neuro tomorrow about some additional leave of absence from work.
I am so bummed. My eyes were starting to bother me right before my second CCSVI procedure. I could tell that I was losing my eyesight (in both eyes!) and was hopeful that I would feel better after my procedure.
I can only half see – just enough to type slowly on the computer. I’m not sure if this is Optic neuritis in both eyes? Or if it is an occipital lobe lesion.
Today is day three of my IV Solumedrol. I’m starting to retain water which makes my eyes swell up and feel worse. Good grief. I think I may have go on MS meds again. 🙁
Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!
I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength.
Hoping to get those back in check following round two.
I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.
I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids.
I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.