I am so bummed. My eyes were starting to bother me right before my second CCSVI procedure. I could tell that I was losing my eyesight (in both eyes!) and was hopeful that I would feel better after my procedure.
Day 3 IVSM for my MS vision issues
I can only half see – just enough to type slowly on the computer. I’m not sure if this is Optic neuritis in both eyes? Or if it is an occipital lobe lesion.
Today is day three of my IV Solumedrol. I’m starting to retain water which makes my eyes swell up and feel worse. Good grief. I think I may have go on MS meds again. 🙁
I just had one of these – scariest thing that has ever happened to me, especially since I am currently going through ON in both eyes. I thought I was done for – I thought my vision in both eyes was gonna be lost.
Unreal how scary these things are – after exhausting Dr. Google, I find this page and it’s the only thing I could find that describes describes it perfectly
Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!
I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength. Hoping to get those back in check following round two.
I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.
I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids. I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.
